JOIN THE FACEBOOK FUNDRAISER FOR GABRIEL Hosted by my friend Tara Knight
Please help support The Reck Family in getting Gabriel the medical care he needs to keep his new hero heart beating and his body thriving. He has already made it through his first and second open heart surgeries at 6 days and 4 months old, and now a full heart transplant at 11 months old. He will need close monitoring and take medicine for the rest of his life just to live . . .
With 4 girls at home and over an hours drive back and forth to the hospital, funds are needed so the family can stay with Gabriel as much as possible while he recovers. His care will require time, specialized care, travel, appointments with many types of doctors and the support of those who love him!
Gabriel was born with a rare congenital heart defect called Hypoplastic Left Heart Syndrome (HLHS). This condition means the left ventricle of the heart is severely underdeveloped. Basically, he only has half his heart working for him and ultimately should receive a heart transplant.
Please take the the time to give, even if it’s only $5. Every little bit will make a difference and be appreciated beyond words!
UPDATE – 3/22/15
Update from Gabriel’s mom (3/22/15): Sunday update : The main medication he receives for rejection, Tacrolimus, is still being adjusted to suit him. Dr.Lecuyer said he looks great and he is thinking Tuesday he should be ready to go to Ronald McDonald house. Once at the Ronald McDonald house (which is with in walking distance to hospital) he will come to the hospital twice a week to see the Cardiologist and he will also have PT, OT, & speech therapy either two or three times a week. At every cardiology appointment they will draw labs to check the levels of his medications and adjust them as needed, they will do an ekg & echo of his new heart as well at every visit. (taken from the GOFUNDME page)
JOIN THE FACEBOOK FUNDRAISER FOR GABRIEL
It is short and sweet but I worked a long time to get the header image set how I wanted it. I have been gearing up for a launch party to start March 17th. I am excited to get this new journey started. Check out the newsletter, subscribe, share, fan the Facebook page and join the Party.
First Weekly Newsletter – March 11, 2015
We have been waiting all winter for snow and mother nature responded to all our desires with just over 31 inches of snow. This store was AMAZING!
The aftermath was even more amazing. I heard the crews outside working most of the night but it sounded like they were in the distance. I woke at 4:30 am to a toddler nestled up to me and the sound of heavy equipment working hard. This was a moment I had a huge decision to make … wake the little guy so he could watch these masters work hard or take the camera downstairs and take pictures and a video for him to watch. I chose the latter of the 2 choices.
I went into the craft room, grabbed the camera and off I went. No coat and no shoes I was on a mission. I was filled with so much excitement I could hardly contain it. I even did a little cheesy “Mighty Machine” voice over for the little guy. I will probably regret that later. It was amazing to see them all working together. In the 20 minutes I watched they filled 4 dump trucks full of snow from the area in front of our house.
Boston’s new Mayor has some big shoes to fill but he is too busy digging a hole he might not climb out of. He is not off to a good start.
Mayor Walsh has signed an order that prohibits Boston city workers for voicing their anti-Olympic opinions. Seems he is on a bit of a power trip. He thinks the whole die in protests are out of hand, I am sure taking away the freedom of speech of city workers wont set very well with the citizens or any of the college students who like to ditch class and protest for anything under the sun.
The order states:
“The City, including its employees, officers, and representatives, shall not make, publish or communicate to any Person, or communicated in any public forum, any comments or statements (written or oral) that reflect unfavorably upon, denigrate or disparage, or are detrimental to the reputation or statute of, the [International Olympic Committee], the [International Paralympic Committee], the USOC, the IOC Bid, the Bid Committee or the Olympic or Paralympic movement. The City, including its employees, officers and representatives, shall each promote the Bid Committee, the USOC, the IOC Bid, U.S. Olympic and Paralympic athletes and hopefuls and the Olympic and Paralympic movement in a positive manner.”
Walsh tells people to think of the crowds and the construction. Is he forgetting that with that also comes more theft and loss? And lets not forget the INCREASE in TAXES that the city and the state residents will have to pay for this event. Heck they don’t have enough tax revenue to cover the current budget what would the taxes raise to to cover the enormous expense of having the Olympics in Boston.
This new mayor clearly doesn’t understand to what point the citizens of Boston will push back. The people of Boston are unique in the way they get their point across. It will be interesting to see how this unfolds over the coming days and weeks. Having people on both side of an issue is how some of the best solutions are created. If everything is one sided then there is never a good solution because everyone is looking at it from the same stance and major issues get over looked. Also, nothing great comes from having a flock of sheep meandering around.
Lets make a simple analogy here: It is similar to the nursery rhyme “The 3 Little Pigs”. A good housing solution didn’t come up until the Big Bad Wolf was there testing the pigs designs and structures that the perfect structure was created. If it wasn’t for the big bad wolf those little pigs would have been living in the flimsy straw house forever.
TO BE CLEAR…
I personally don’t give a flying crap if the Olympics are in Boston or not. It is the taking away the freedom of speech because he doesn’t like what people are saying I have an issue with.
This case is of personal interest to me as we have chosen to homeschool our son. I know homeschooling isn’t the reason for this case but it is still scary to think that being a homeschool parent puts you under a totally different microscope than parents of kids who go to a public or private educational institute. Being a parent who chooses homeopathic medical treatment over the more poisonous modern medicine treatments adds another concern. It is sad to think that this can happen to any family that doesn’t fit the “normal” American ideals.
The officers of the Garland County Sheriffs Office ripped seven of the nine children still living at home away from Hal and Michelle Stanley on January 12th. They were taken into custody on the accusations of an anonymous person’s report. They acquired a search warrant for MMS and when it was found, without question or debate they ripped the children away from the parents. The parents were made to stand in the cold with no coats for over an hour and not able to see or speak to their children. They were not allowed to retrieve their phones and they were not allowed to call for a lawyer.
I want to put the focus on MMS – Miracle Mineral Solution. I want to give the other side since everything that they will dig up and try to present will only be 1/4 of the truth. They will focus on the negatives and not the positive and beneficial health aspects. MMS solution sold by MMS Products International “is a mixture of 28% sodium chlorite that has been standardized within a distilled water base” making the chlorine dioxide. This is not to be confused with chlorine or bleach.
What does it treat?
HIV/AIDS – when used for 3 weeks in a specific protocol it can be used to treat most cases with a high rate of successful curing. It has successfully treated hepatitis A,B and C, malaria, herpes, and TB. Most cancers respond well to the MMS treatment when following the correct protocols for the specific infection. It is an alternative treatment for anthrax, which is excellent news for anyone who are allergic to the current treatment protocols. It can safely and effectively treat various types of yeast, mold, fungi, viruses, and bacterial infections. It can be used to treat ground water (well water) to make it safe to drink without the use of harmful chemicals.
The FDA won’t endorse this as a medical treatment or medically beneficial treatment because of the fear it would take away from the pharmaceutical companies who line their pockets with money. Just my opinion.
I do think this is amazing and find the facts to be very interesting. Would I personally use it probably not because if you don’t follow the specific protocols it can be toxic, but so can just about anything we ingest.
Jim Humble’s Website, MMSDrops.com, MMS Products International
Movie Rating ♥♥♥♥♥ (5/5) Movie Trailer Posted below
We bought this movie on iTunes yesterday and it was worth the wait. We missed it when it was in the theater. This movie has romance, action and drama. I liked how it is a narrative and a story at the same time. The colors were festive and bright and in the land of the forgotten the colors were brilliant shades of grey and black, The story is an amazing journey of 3 friends, 2 boys and 1 girl, one can guess where it goes from there. So good my almost 3 year old sat on the couch and watched the whole thing cheering on the guys and laughing at the jokes.
Check out the Trailer.
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I always knew my son had a hard head. This evening I learned just how hard it is. His head collided with my face as he jumped and fell full force in to me. The result… A trip to the Emergency Room for me, where my loving almost 3 year old tells the lady at the desk “I hurt my Mommy’s nose” followed by the demand of “Fix it …(pause) Mommy’s nose bleeding”.
When we get into the room I get the chair and he gets the bed… He didn’t even share with me. But mainly because my head hurt so much that I didn’t want to fight with him over me needing to relax. After about an hour of waiting, playing trucks and listening to a toddler down the hall crying in pain, and the teen in the bed next to me whining like a 2 year old my little man needed to be taken outside. His daddy is the best. He has been sick for a couple days and insisted he take me to the ER, which I am grateful beyond words that he did. He had to take our stubborn and misbehaving toddler out to the car to wait. He drove him around to try to calm him down and that wasn’t working so he called me. Thankfully right as he called I was waiting on my discharge papers and would be right out.
Earlier this evening he said the statement “I smash mommy’s face” with an evil little snicker like he was proud of it. Thankfully, as I was writing that my little guy looks at me with angelic eyes and repeats “I smash mommy’s face with my head. I’m sorry Mommy” and gives me a kiss. I love this kid more than anything. and this one is a story for his Baby Book “The Day I Broke Mommy’s Nose”
The result of my toddler’s concrete hard head colliding with my face:
1. a broken nose
2. possibly a tiny break in my cheek bone
3. bloody nose that is still bleeding almost 6 hours later.
4. swollen sinuses
5. blood draining down my throat. (YUCK)
6. a wicked headache that neither Tylenol nor Ibuprofen is helping to relieve.
7. a referral to an ENT for next week…
My son who is almost 3 is too smart for his own good sometimes. On the flip side his language skills have helped to avoid many meltdowns and tantrums. He is starting to read, which I welcome but now I have a hard time reading a book to him. I suppose this is natural but I miss my little boy who would let me read him a story or 5 at bedtime. I do find it absolutely amazing that he is starting to read to me at just shy of 3 years old.
How is this too smart for his own good? Well, he is now picking up on words we spell so he doesn’t know what we are saying. I really thought we would have longer in the coded parent spelling language days but oh well. Today I spelled “I C E C R E A M” to his daddy to see if he wanted some and the little bugger says to me “chocolate please.” I proceeded to reach for an M&M and he says “NO Mommy, I want chocolate ice cream” There is no fooling this little critter. So much for the surprise dessert.
Parents who haven’t made it to this stage yet… enjoy your time of being able to spell to communicate with your other half, or any other adult. Once it is over it is a sad realization that your baby/toddler is not a baby/toddler any more they are now turning into complex little humans.
I was saddened to hear that cyber bullying is occurring on Facebook when they claim to be tough on it. Don’t believe the claims, Facebook protects the cowardly bullies under their privacy terms.
This case is so close to home that I don’t know where to even begin. First here are some basics. My friend was about 23-24 weeks pregnant when it was determined that there wasn’t a fetal heartbeat. She had to go through labor and delivery of her stillborn daughter. This act alone for a mother is the hardest most devastating moment of their lives. She was blessed to have had the precious moments with her angel baby where she could hold her in her arms, look at her tiny hands and feet, and say goodbye.
With that she shared openly her loss. Her friends were by her side offering support. She posted pictures of her beautiful baby girl. Julianna Skye, was a baby who wasn’t strong enough to take a breath in our world but instead crossed over to be an angel for her mommy and big sister. Her spirit lives on for them in the few pictures that my friend was able to take of her and her precious baby in those short moments they had together before she had to hand Julianna to a nurse to be taken away.
Shortly after she posted the photos of her daughter someone had marked one of the photos as abusive and she was notified. She was so upset and a bunch of us commented about this spineless person and how horrible it was of them to do this to a mother who just lost her baby. She went offline for a few weeks and came back creating a new profile that was private and just for people who were friends. On December 26, 2014, Julianna’s due date, my friend and her daughter did a balloon release at her grave site. She was having the lowest moment of her day posted her pictures and opened up to us, the ones she thought were her friends. Someone in the group submitted the picture of her daughter as “graphic violence” to the Facebook admin. She tried to contact Facebook in regards to her photos and what she went through and all she was cold in a cold email is that they wouldn’t tell her who was reporting them. If she knew who was reporting them she could have blocked them from her page.
Some people may not see reporting 2 images as bullying but the face that my friend created a new profile and it happened again means it was someone who knew her and it was a deliberate stab when she was most vulnerable. Facebook’s privacy BS but when it is used to protect a coward who is getting off on tormenting a grieving mother they should really step up and help that mother not add to her pain and suffering. I asked my friend if I could post the picture of her little girl because to me she looks like a sleeping angel in a praying position. Not one thing about this photo is violent or graphic. Julianna is swaddled like any other newborn after birth with a cap and blanket wrapped to look like an outfit.
Rest in Peace beautiful angel baby, Julianna Skye.